Experiences of people with long COVID: Symptoms, support strategies and the Long COVID Optimal Health Programme (LC-OHP).
Hiyam Al-JabrDavid R ThompsonDavid Jonathan CastleChantal F SkiPublished in: Health expectations : an international journal of public participation in health care and health policy (2023)
The LC-OHP was derived from the OHP. It was adapted to people with LC following consultation with practitioners at an LC clinic. Additionally, the mode and timing of delivering the programme to this population were taken into account for its delivery at the convenience of participating patients. While considering that fatigue and brain fog are amongst the most reported complaints of people with LC, public members with LC were not involved directly in this study; however, feedback obtained from practitioners working with this population was implemented in amending the programme and its delivery. Additionally, feedback from patients with other chronic health conditions who used the OHP in previous studies has been implemented to make the programme more user-friendly. Moreover, feedback obtained from participants receiving this programme in this study was implanted immediately and shared with other participants. Finally, this study was overviewed by a data management committee that included two public members with LC, who contributed and provided guidance to support this study.
Keyphrases
- healthcare
- mental health
- simultaneous determination
- coronavirus disease
- primary care
- public health
- sars cov
- mass spectrometry
- end stage renal disease
- palliative care
- emergency department
- newly diagnosed
- chronic kidney disease
- physical activity
- general practice
- peritoneal dialysis
- climate change
- deep learning
- adverse drug
- sleep quality
- high resolution mass spectrometry