Euthanasia and assisted suicide for people with an intellectual disability and/or autism spectrum disorder: an examination of nine relevant euthanasia cases in the Netherlands (2012-2016).
Irene Tuffrey-WijneLeopold CurfsIlora FinlaySheila HollinsPublished in: BMC medical ethics (2018)
Autonomy and decisional capacity are highly complex for patients with intellectual disabilities and difficult to assess; capacity tests in these cases did not appear sufficiently stringent. Assessment of suffering is particularly difficult for patients who have experienced life-long disability. The sometimes brief time frames and limited number of physician-patient meetings may not be sufficient to make a decision as serious as EAS. The Dutch EAS due care criteria are not easily applied to people with intellectual disabilities and/or autism spectrum disorder, and do not appear to act as adequate safeguards.
Keyphrases
- autism spectrum disorder
- intellectual disability
- attention deficit hyperactivity disorder
- end stage renal disease
- ejection fraction
- healthcare
- newly diagnosed
- chronic kidney disease
- emergency department
- multiple sclerosis
- primary care
- palliative care
- case report
- prognostic factors
- quality improvement
- patient reported outcomes
- pain management