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Young people's priorities for the self-management of distress after stoma surgery due to inflammatory bowel disease: A consensus study using online nominal group technique.

Benjamin SaundersKay PolidanoLucy BrayTamsin FisherNadia CorpMegan McDermott-HughesAdam D FarmerBeth MorrisSahara Fleetwood-BeresfordCarolyn Anne Chew-Graham
Published in: Health expectations : an international journal of public participation in health care and health policy (2024)
Three patient contributors are co-authors on this paper, having contributed to the study design, interpretation of results and writing of the manuscript. The study's Patient and Public Involvement and Engagement advisory group also had an integral role in the study. They met with the research team for four 2-h virtual meetings, giving input on the aims and purpose of the study, recruitment methods, and interpretation of findings. The group also advised on the age range for participants. The views of young people with a stoma are the central component of the study reported in this paper, which aims to gain consensus among young people with an IBD stoma on their priorities for the content of a resource to self-manage distress related to stoma surgery.
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