Factors affecting anticipatory grief of family carers supporting people living with Motor Neurone disease: the impact of disease symptomatology.
Ana Paula TruccoMizanur KhondokerNaoko KishitaTamara BackhouseHelen CopseyEneida MioshiPublished in: Amyotrophic lateral sclerosis & frontotemporal degeneration (2024)
This study suggests that disease-related factors may be the strongest predictors of carer AG. Interventions addressing carers' understanding and management of MND symptoms seem crucial to support their experiences of loss and their acceptance of MND. Evidence-based support for carers in MND services is required.