Towards person-centred quality care for children with life-limiting and life-threatening illness: Self-reported symptoms, concerns and priority outcomes from a multi-country qualitative study.
Eve NamisangoKatherine BristoweFliss E M MurtaghJulia DowningRichard A PowellMelanie AbasLynne LohfeldZipporah AliMackuline AtienoDesiderius HaufikuSamuel GumaEmmanuel Bk LuyirikaFaith N Mwangi-PowellIrene J HigginsonRichard HardingPublished in: Palliative medicine (2020)
This study bridges an important knowledge gap regarding symptoms, concerns and outcomes that matter to children living with life-limiting conditions and their families and informs service development and evaluation.