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Towards person-centred quality care for children with life-limiting and life-threatening illness: Self-reported symptoms, concerns and priority outcomes from a multi-country qualitative study.

Eve NamisangoKatherine BristoweFliss E M MurtaghJulia DowningRichard A PowellMelanie AbasLynne LohfeldZipporah AliMackuline AtienoDesiderius HaufikuSamuel GumaEmmanuel Bk LuyirikaFaith N Mwangi-PowellIrene J HigginsonRichard Harding
Published in: Palliative medicine (2020)
This study bridges an important knowledge gap regarding symptoms, concerns and outcomes that matter to children living with life-limiting conditions and their families and informs service development and evaluation.
Keyphrases
  • healthcare
  • young adults
  • quality improvement
  • mental health
  • palliative care
  • sleep quality
  • metabolic syndrome
  • pain management
  • skeletal muscle
  • adipose tissue
  • depressive symptoms
  • physical activity
  • clinical evaluation