Disparities in Congenital Cytomegalovirus (cCMV) Postpartum Newborn Screening Research Participation.
Whitney WunderlichAnna K SchulteMark R SchleissMarc VacquierAbbey C SidebottomPublished in: Journal of racial and ethnic health disparities (2024)
NH Black and NH multiracial patients were among the most likely patient groups to decline study participation. These groups have previously been identified to be at increased risk for cCMV. This differential participation in cCMV research could result in underreported estimates of prevalence. Future cCMV research, including surveillance studies, should include documentation of differential participation to both address efforts to improve research participation and document and address potential bias in results.