Psychosocial well-being of long-term survivors of pediatric head-neck rhabdomyosarcoma.
Bas VaarwerkReineke A SchootHeleen Maurice-StamOlga SlaterBenjamin HartleyPeerooz SaeedEva GajdosovaMichiel W van den BrekelAlfons J M BalmMarinka L F HolStefanie van JaarsveldLeontien C M KremerCecile M RonckersHenry C MandevilleBradley R PietersMark N GazeRaquel Davila FajardoSimon D StrackeeDavid DunawayLudi E SmeeleJulia C ChisholmHuib N CaronMartha A GrootenhuisJohannes H M MerksPublished in: Pediatric blood & cancer (2018)
In general, HRQoL in HNRMS survivors was comparable to reference groups; however, survivors did report disease-specific consequences. We therefore recommend including specific questionnaires related to difficulties with facial appearance in a systematic monitoring program to determine the necessity for tailored care.