An evaluation of patient-reported outcomes in sickle cell disease within a conceptual model.
Marsha J TreadwellSwapandeep MushianaSherif M BadawyLiliana PreissAllison A KingBarbara KronerYumei ChenJeffrey GlassbergVictor GordeukNirmish ShahAngela SnyderTheodore Wunnull nullPublished in: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation (2022)
Study results highlight the importance of the biopsychosocial model to enhance understanding of the needs of this complex population, and to design multi-dimensional approaches for providing more effective interventions to improve outcomes.