Perceptions and Preferences Regarding Multiple Sclerosis Research Among Racial and Ethnic Groups.
Daniela A Pimentel MaldonadoApril MorenoMitzi J WilliamsLilyana AmezcuaShawn FelicianoAnita WilliamsDaniel MachemerTerrie LivingstonMonique LaRocqueMelissa GlimHollie K SchmidtPublished in: International journal of MS care (2021)
We found strong support for research across racial and ethnic groups; however, minority groups have specific concerns regarding mistrust, receiving poor-quality care, unemployment, health insurance, and legal status. Investigators wanting to recruit a diverse study population are advised to show how they have addressed these concerns and to communicate how the research will advance the science and literature and result in better care and/or other benefits to underrepresented communities.