Patient-Reported Outcomes among Transition-Age Young Adults with Juvenile Idiopathic Arthritis in the Childhood Arthritis and Rheumatology Research Alliance Registry.

Emily A Smitherman Rouba A Chahine Nicole Bitencourt A K M Fazlur Rahman Erica F Lawson Joyce C Changnull null

Published in: The Journal of rheumatology (2022)

Young adult respondents with JIA in the CARRA Registry commonly report persistent medication use, but still report more problems with pain as compared to population norms. Additional work is needed to understand how best to address comorbid pain around the period of transition to adult care.

Keyphrases

juvenile idiopathic arthritis
young adults
patient reported outcomes
childhood cancer
chronic pain
pain management
disease activity
neuropathic pain
rheumatoid arthritis
healthcare
mental health
palliative care
quality improvement
postoperative pain