Unmet support needs in teenage and young adult childhood brain tumour survivors and their caregivers: "it's all the aftermath, and then you're forgotten about".
Emma NicklinLucy PointonAdam GlaserNaseem SarwarMichelle Kwok-WilliamsMiguel DebonoGalina VelikovaFlorien W BoelePublished in: Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer (2021)
Even many years after diagnosis, TYA childhood brain tumour survivors and their caregivers continue to have unmet supportive care needs. Both TYA survivors and their caregivers can benefit from support to meet their unique needs and improve long-term quality of life. Understanding unmet needs and recognising what services are required due to the late effects of treatment is critical to improving long-term quality of survival.