Development and pilot implementation of Iranian Hemolytic Uremic Syndrome Registry.

Mina LazemNakysa HoomanAbbas Sheikhtaheri

Published in: Orphanet journal of rare diseases (2022)

We implemented IRI.HUS.Reg based on related features, 12 data classes agreed by specialists, literature review, and comparison with other existing registries. Therefore, the data collected in this registry can be compared with other data from existing registries in other countries.

Keyphrases

electronic health record
big data
case report
healthcare
primary care
data analysis
deep learning