Analysis of existing "how to" manuals for the care of inpatients with epidermolysis bullosa.

Alyssa BrenemanKimberly D MorelAmy S PallerLaura E Levin

Published in: Pediatric dermatology (2022)

"How to" skin care manuals assist health care professionals caring for hospitalized patients with epidermolysis bullosa and other disorders. Manuals created by Epidermolysis Bullosa Clinical Research Consortium sites were collected and analyzed. Analysis of manuals revealed variable content. Creating a unified, optimized "how" to manual would benefit providers and patients.

Keyphrases

healthcare
end stage renal disease
palliative care
ejection fraction
newly diagnosed
quality improvement
affordable care act
peritoneal dialysis
pain management
single cell
patient reported outcomes
social media