The data set development for the National Spinal Cord Injury Registry of Iran (NSCIR-IR): progress toward improving the quality of care.
Zahra AzadmanjirSeyed Behzad JazayeriRoya Habibi ArejanZahra GhodsiMahdi Sharif-AlhoseiniGhazaleh KheiriKazem ZendehdelMahdi SafdarianFarideh SadeghianZahra KhazaeipourKhatereh NaghdiJalil Arab KheradmandSoheil SaadatHabibollah PirnejadMohammad Reza FazelEsmail FakharianMahdi MohammadzadehMohsen Sadeghi-NainiHoushang SaberiPegah DerakhshanHadis SabourEdward C BenzelGerard OreillyVanessa NoonanAlexander R VaccaroSeyed Hassan Emami-RazaviVafa Rahimi-MovagharPublished in: Spinal cord series and cases (2020)
The NSCIR-IR data set was developed in order to meet the quality improvement objectives of the registry. The process was centered around choosing the data elements assessing care provided to individuals in the acute and chronic phases of SCI in hospital settings. The International Spinal Cord Injury Data Set was selected as a basic framework, helped by comparison with data from other countries. Expert panel modifications facilitated the implementation of the registry process with the current clinical workflow in hospitals.