Recommended care and care adherence following a diagnosis of Lynch syndrome: a mixed-methods study.
Kathleen F MittendorfJessica Ezzell HunterJennifer L SchneiderElizabeth ShusterAlan F RopeJamilyn ZeppMarian J GilmoreKristin R MuessigJames V DavisTia L KauffmanKellene M BergenGeorgia L WiesnerLouise S AchesonSusan K PetersonSapna SyngalJacob A ReissKatrina A B GoddardPublished in: Hereditary cancer in clinical practice (2019)
We identified fewer than expected patients with LS in our large care system, indicating that there is still a diagnostic care gap. However, patients with LS were likely to receive and follow CRC surveillance recommendations. Recommendations for and adherence to extracolonic surveillance were variable. Improved care coordination and clearer documentation of the LS diagnosis is needed.