The Jamaican Haemophilia Registry: Describing the burden of disease.

G WharfeL Buchner-DaleyT GibsonP HilliardKoyo Usuba Audrey AbadL Boma-FischerV BouskillG FlorosD LillicrapY LoweD LoweN Palmer-MitchellM L RandJ TeitelA TuttleA WatsonR WhiteNancy L YoungV S Blanchette

Published in: Haemophilia : the official journal of the World Federation of Hemophilia (2018)

There is a very high burden of disease in PWH in Jamaica. The health profiles reported in this paper are an essential first step in advocating for a multidisciplinary Comprehensive Care Program for assessment and care of PWH in Jamaica.

Keyphrases

quality improvement
healthcare
palliative care
mental health
pain management
affordable care act
risk assessment
chronic pain