The Upper Gastrointestinal Cancer Registry (UGICR): a clinical quality registry to monitor and improve care in upper gastrointestinal cancers.
Ashika D MaharajJennifer F HollandRi O ScarboroughSusan EvansLiane J IoannouWendy BrownDaniel G CroaghCharles H C PilgrimJames G KenchLara R LiptonTrevor LeongJohn J McNeilMehrdad NikfarjamAhmad AlyPaul R BurtonPaul A CashinJulie ChuCuong P DuongPeter EvansDavid GoldsteinAndrew HaydonMichael W HiiBrett P F KnowlesNeil D MerrettMichael MichaelRachel E NealeJennifer A M PhilipIan W T PorterMarty SmithJohn SpillanePeter P TagkalidisJohn R ZalcbergPublished in: BMJ open (2019)
The UGICR will provide regular reports of risk-adjusted, benchmarked performance on a range of quality indicators that will highlight variations in care and clinical outcomes at a health service level. The registry has also been developed with the view to collect patient-reported outcomes (PROs), which will further add to our understanding of the care of patients with these cancers.