(Lack of) knowledge of mothers about sickle cell trait and disease: a qualitative study.
Rafael RochaTania Vignuda de SouzaRita de Cássia Melão de MoraisLuciana de Cássia Nunes NascimentoLeila Leontina do CoutoIraína Fernandes de Abreu FariasPublished in: Revista brasileira de enfermagem (2021)
diagnosis cannot be restricted to the result of neonatal screening, requiring that preventive information on sickle cell crises be reinforced. It is recommended to search for other affected relatives to learn about their genetic condition, reflecting on their reproductive decisions.