Rationalizing the Influence of Co-Design on Distress, Clinical Decision-Making and Disease Self-Management of Cancer Patients-as-Partners: A Quasi-Experimental Study.
Zahraa AlrayshouniAlaa Yehya DayekhAhmad El-TassiAnnamaria PakaiPublished in: Health expectations : an international journal of public participation in health care and health policy (2024)
Patients and family members were engaged in the co-design of the study methodology, especially the modification of a research instrument. Patient partners with lived experience were involved in the patient partnership committee as core members to improve healthcare system design and evaluation.