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Critical disease burdens of Australian adults with cystic fibrosis: Results from an online survey.

Anastasia WardRamil MauleonJacinta ArellanoChee Y OoiNedeljka N Rosic
Published in: Pediatric pulmonology (2023)
The nationwide survey identified a diverse range of clinical manifestations experienced by the Australian CF population. Chronic pain, linked to aging and the changing landscape of disease, was a significant indicator of the burden of disease. A comprehensive understanding of the phenotypic profiles and symptom variability will contribute to future research and provide insights into the impacts of disease and the burden of therapy, particularly in children, at the start of their health journey.
Keyphrases
  • chronic pain
  • healthcare
  • cystic fibrosis
  • risk factors
  • current status
  • patient reported
  • climate change
  • health information
  • replacement therapy