"Why and how did this happen?": development and evaluation of an information resource for parents of children with CHD.
Alexis V HuntDesiree C K HiltonCharlotte E VerrallKristine K Barlow-StewartJane FlemingDavid S WinlawGillian M BluePublished in: Cardiology in the young (2020)
Use of the information resource significantly enhanced parents' knowledge of CHD causation and increased their psychosocial functioning. It is a valuable resource in the absence of genetic counselling; however, it should not replace formal genetic counselling when required.