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Patient interest in the development of a center for Ehlers-Danlos syndrome/hypermobility spectrum disorder in the Chicagoland region.

Wendy WagnerTom A DoyleClair A FrancomanoDacre R T KnightColin Michael Egenberger Halverson
Published in: Orphanet journal of rare diseases (2024)
We conclude that the establishment of a collaborative medical center specializing in the diagnosis and treatment of EDS, Hypermobility Spectrum Disorder, and related disorders in the Chicagoland area would greatly benefit patients by providing comprehensive care, alleviate the burden on overworked healthcare providers, and contribute to the sustainability of medical facilities.
Keyphrases
  • spectrum disorder
  • healthcare
  • end stage renal disease
  • case report
  • newly diagnosed
  • quality improvement
  • palliative care
  • peritoneal dialysis
  • prognostic factors
  • risk factors
  • pain management
  • affordable care act