Feasibility and preliminary outcomes of an integrated pediatric sickle cell disease and pulmonary care clinic for children with sickle cell disease.
L Vandy BlackDima EzmignaTanya Wallace-FarquharsonDiana J WilkieLaurie DuckworthPublished in: Pediatric blood & cancer (2020)
Asthma is prevalent in children with SCD, and interdisciplinary clinics can improve access to subspecialty pulmonary care and reduce unplanned acute care. Additional patients and a longer follow-up period are required to determine the true treatment effect.
Keyphrases
- sickle cell disease
- acute care
- healthcare
- pulmonary hypertension
- young adults
- primary care
- end stage renal disease
- palliative care
- ejection fraction
- quality improvement
- newly diagnosed
- chronic obstructive pulmonary disease
- chronic kidney disease
- pain management
- prognostic factors
- lung function
- affordable care act
- adipose tissue
- cystic fibrosis
- skeletal muscle
- health insurance
- patient reported
- weight loss
- glycemic control