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Disclosure of genetic information to family members: a systematic review of normative documents.

Amicia PhillipsPascal BorryIne Van HoyweghenDanya F Vears
Published in: Genetics in medicine : official journal of the American College of Medical Genetics (2021)
Our findings present concerns regarding the ability of these normative documents to guide HCPs' decision making around the disclosure of genetic information to family members. Clearer guidance outlining the responsibilities and acceptability of disclosure is necessary to facilitate disclosure of genetic information to family members.
Keyphrases
  • genome wide
  • decision making
  • copy number
  • dna methylation