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The importance of power, context and agency in improving patient experience through a patient and family centred care approach.

Josephine OclooJoanna GoodrichHiro TanakaJulia Birchall-SearleDerek DawsonMichelle Farr
Published in: Health research policy and systems (2020)
Given this context, improving patient experience needs to go well beyond small-scale projects at the micro and meso level to incorporate a more critical understanding of systems, the wider organisational context and how power operates at multiple levels to enable and constrain action. In order to more meaningfully understand and address the factors that can help or hinder activities to improve patient experiences, PFCC frameworks and methods need to account for how power inequities operate and require the adoption of more participatory co-produced and empowering approaches to involve patients, relatives, carers and staff in improving complex healthcare environments.
Keyphrases
  • healthcare
  • end stage renal disease
  • case report
  • chronic kidney disease
  • ejection fraction
  • quality improvement
  • newly diagnosed
  • peritoneal dialysis
  • palliative care
  • prognostic factors
  • chronic pain
  • patient reported