Assessing the psychometric properties of quality of life measures in individuals with amyotrophic lateral sclerosis: a systematic review.

Faryal ZahirAlicia HanmanNazmehr YazdaniSabrina La RosaGemma SleikBrooke SullivanAva MehdipourSelina MaloukaAyse Kuspinar

Published in: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation (2023)

This review identified evidence in support of the ALSAQ-40 or ALSAQ-5 for individuals with ALS. These findings can guide healthcare practitioners when selecting evidence-based QoL and HRQoL PROMs for patients and provide researchers with insight into gaps in the literature.

Keyphrases

amyotrophic lateral sclerosis
psychometric properties
patient reported outcomes
healthcare
end stage renal disease
ejection fraction
newly diagnosed
systematic review
primary care
prognostic factors