"It seems like COVID-19 now is the only disease present on Earth": living with a rare or undiagnosed disease during the COVID-19 pandemic.
Meghan C HalleyTalia StanleyJay MaturiAaron J GoldenbergJonathan A BernsteinMatthew T WheelerHolly K TaborPublished in: Genetics in medicine : official journal of the American College of Medical Genetics (2021)
There are specific, serious challenges affecting RUD patients and families during the COVID-19 pandemic. There is an urgent need to develop approaches to mitigate these challenges both during and beyond the pandemic.