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"It seems like COVID-19 now is the only disease present on Earth": living with a rare or undiagnosed disease during the COVID-19 pandemic.

Meghan C HalleyTalia StanleyJay MaturiAaron J GoldenbergJonathan A BernsteinMatthew T WheelerHolly K Tabor
Published in: Genetics in medicine : official journal of the American College of Medical Genetics (2021)
There are specific, serious challenges affecting RUD patients and families during the COVID-19 pandemic. There is an urgent need to develop approaches to mitigate these challenges both during and beyond the pandemic.
Keyphrases
  • coronavirus disease
  • sars cov
  • end stage renal disease
  • ejection fraction
  • chronic kidney disease
  • newly diagnosed
  • patient reported