Perceptions of vision care following neurological impairment: a qualitative study.
Kerry Louise HannaElizabeth LomasStephen RimmerFiona RowePublished in: BMC health services research (2024)
Inequalities were noted by participants, with most reporting a lack of suitable vision care offered as part of their neurological rehabilitation. Participants were thus burdened with the task of seeking their own support online, and encountered inaccurate and worrying information in the process. Participants noted changes in their identity, and the identity of their family carers, as they adjusted to their vision loss. The findings from this research highlight a need for clinicians to consider the long-term impact of vision loss after neurological impairment, and ensure patients are provided with adequate support and information, and appropriate referral pathways, alleviating this patient burden.
Keyphrases
- healthcare
- palliative care
- health information
- end stage renal disease
- primary care
- ejection fraction
- newly diagnosed
- quality improvement
- mental health
- pain management
- case report
- social media
- peritoneal dialysis
- prognostic factors
- cerebral ischemia
- emergency department
- patient reported outcomes
- affordable care act
- brain injury
- health insurance
- electronic health record