Development of a symptom menu to facilitate Goal Attainment Scaling in adults with Down syndrome-associated Alzheimer's disease: a qualitative study to identify meaningful symptoms.

Kari KnoxJustin StanleyJames A HendrixHampus HillerstromTaylor DunnJillian AchenbachBrian A ChicoineFlorence LaiIra LottSanja StanojevicSusan E HowlettKenneth Rockwood

Published in: Journal of patient-reported outcomes (2021)

A comprehensive symptom menu for adults living with DS-AD was developed to facilitate GAS. Incorporating expert clinician opinion and input from caregivers of adults with DS-AD identified meaningful items that incorporate patient/caregiver perspectives.

Keyphrases

patient reported
case report
palliative care
cognitive decline
room temperature
clinical practice
sleep quality
mild cognitive impairment
carbon dioxide
ionic liquid