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Parents' Journeys of Mastery and Knowledge Construction After Their Infant's First Stage of Surgery for Complex Congenital Heart Disease.

Kerry L GaskinDavid BarronJo Wray
Published in: Comprehensive child and adolescent nursing (2023)
Parents of infants with complex congenital heart disease obtain knowledge, confidence, and mastery dependent upon their transition experience and their personal journey through pre-liminal, liminal, and post-liminal phases of discharge from hospital to home. A conceptual framework "Parenting through Transitions - hospital to home" emerged that could assist in structuring assessment of parents' knowledge and support needs within a coordinated discharge process. Identifying individualized support would promote adaptation and adjustment during transition from the pre to post liminal phase, following their infant's first stage of complex cardiac surgery.
Keyphrases
  • congenital heart disease
  • healthcare
  • cardiac surgery
  • minimally invasive
  • acute care
  • acute kidney injury
  • coronary artery bypass
  • atrial fibrillation