Characterizing health state utilities associated with Duchenne muscular dystrophy: a systematic review.

Shelagh M SzaboIvana F AudhyaDaniel C Malone David FeenyKatherine L Gooch

Published in: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation (2019)

Published health state utilities document the substantial HRQoL impacts of DMD, particularly with disease progression. Additional research in patient utilities for additional health states, particularly in non-ambulatory DMD patients, is warranted.

Keyphrases

duchenne muscular dystrophy
public health
healthcare
mental health
health information
end stage renal disease
ejection fraction
muscular dystrophy
chronic kidney disease
health promotion
systematic review
prognostic factors
climate change
social media
patient reported outcomes