Nationwide citizen access to their health data: analysing and comparing experiences in Denmark, Estonia and Australia.
Christian NohrLiisa ParvPille KinkElizabeth CummingsHelen AlmondJens Rahbek NørgaardPaul TurnerPublished in: BMC health services research (2017)
The paper highlights the impact of opt-in/opt-out approaches on citizen access and the lack of a structured approach to addressing differences in citizen health and e-health literacy. This research also confirms while current data provides detail on the availability and use of personal health data by citizens, questions still remain over the ultimate impact on patient outcomes of these initiatives. It is anticipated the insights generated from the three countries experiences, supporting citizen access to their health data will be useful to improve these initiatives and guide other countries aspiring to support similar initiatives.