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Enriching a randomized controlled treatment trial for anorexia nervosa by lived experience-Chances and effects of a lived experience council in the SUSTAIN study.

Katrin Elisabeth GielJudith BremerSusanne Rieß-StummBettina GreggAnke FritzIsabel KlemmMelissa-Claire DaugelatKathrin Schagnull null
Published in: The International journal of eating disorders (2023)
Incorporating perspectives of people with lived experience into a participatory framework of mental health research bears huge potential on a societal level. This includes more relevant research topics and designs, more tailored and effective interventions, and facilitated implementation, as well as dissemination, higher credibility, destigmatization of mental illness, and patient empowerment. Participatory clinical research, however, needs structural anchorage within science and society.
Keyphrases
  • mental illness
  • anorexia nervosa
  • mental health
  • primary care
  • healthcare
  • public health
  • clinical trial
  • study protocol
  • case report
  • phase ii
  • phase iii
  • human health
  • open label