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Exploring disease perception in Behçet's syndrome: combining a quantitative and a qualitative study based on a narrative medicine approach.

D MarinelloI PallaV LorenzoniG AndreozziS PirriS TicciatiS CannizzoA Del BiancoE FerrettiS SantoniG TurchettiM MoscaRosaria Talarico
Published in: Orphanet journal of rare diseases (2023)
To our knowledge, this is the first study that addressed disease perception also applying the NM principles in BS. The current perception that BS patients have of their disease should encourage the BS scientific and patient community in joining forces in order to improve the journey of BS patients.
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