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"I just keep thinking that I don't want to rely on people." a qualitative study of how people living with dementia achieve and maintain independence at home: stakeholder perspectives.

Penny RapaportAlexandra BurtonMonica LevertonRuminda Herat-GunaratneJules Beresford-DentKathryn LordMurna DownsSue BoexRossana HorsleyClarissa GiebelClaudia Cooper
Published in: BMC geriatrics (2020)
Psychosocial interventions must accommodate tensions between positive risk-taking and avoiding harm, facilitating autonomy and providing support. They should be adaptive and collaborative, combining self-management with flexible support. Compassionate implementation of rights-based dementia care must consider the emotional burden for family carers of supporting someone to live positively with risk.
Keyphrases
  • quality improvement
  • mild cognitive impairment
  • healthcare
  • cognitive impairment
  • primary care
  • palliative care
  • chronic pain