Shared Decision-Making: Process for Design and Implementation of a Decision Aid for Patients With Craniosynostosis.

Abdullah M SaidEma Zubovic Kristin D Pfeifauf Gary B SkolnickJude AgboadaPenina Acayo-LakerSybill D NaidooMary C PolitiMatthew SmythKamlesh B Patel

Published in: The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association (2022)

We developed a customizable decision aid for single suture craniosynostosis treatment options. This tool lays the foundation for shared decision-making by assessing family preferences and providing clear, concise, and credible information regarding surgical treatment. Future research can evaluate this tool's impact on patient-clinician discussions about families' goals and preferences for treatment.

Keyphrases

decision making
primary care
healthcare
case report
current status
quality improvement
health information
combination therapy
replacement therapy