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Digital Narratives of Living With Lupus: Lived Experiences and Meanings for Latin American and Latino Patients and Their Families.

Tirsa Colmenares-RoaAlfonso Gastelum-StrozziErica CrosleyYurilis Fuentes-SilvaCristina Reatégui-SokolovaClaudia Elera-FitzcarraldSoledad IbañezErnesto CairoliBernardo A Pons-EstelCristina DrenkardIngris Pelaez-Ballestas
Published in: Arthritis care & research (2022)
Patients perceive lupus as an unpredictable illness and use metaphors to foster empathy and communicate their experiences to others. Religion is as important as medical treatment to cope with the disease, and the experience of having lupus extends to family and friends. Findings can be used to improve physician-patient communication and lupus education campaigns in the Latin American and Latino population.
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