Genetic counselors' comfort and knowledge of cancer risk assessment for transgender patients.
Tala BerroKimberly ZayhowskiTessa FieldNadine ChannaouiJilliane SoteloPublished in: Journal of genetic counseling (2019)
Transgender individuals are often their own health advocates, especially if seeking hormone therapies and gender-affirmation surgeries. While literature exists in the genetic counseling field that explores the relationship between genetic counselors and lesbian, gay, and bisexual patients, there is less research that directly addresses transgender patients. This study assessed cancer genetic counselors' education, knowledge, and comfort with transgender health issues, such as hormone therapies and gender affirmation surgeries. A survey evaluated comfort with relevant vocabulary terms and performance on written case vignettes to approximate how cancer genetic counselors would facilitate conversations with transgender patients about cancer risks. Conclusions drawn in this study are representative of this subpopulation, which is skewed toward a younger population. Mean similarity between responses and predetermined correct answers on the case vignettes was 78.5%. A majority of participants endorsed wanting more education on implications of transgender identity on cancer risk assessment, a need underscored by some participants reporting their discomfort asking about gender pronouns. There was an overall lack of consensus on breast cancer screening based on estrogen therapy, pedigree symbol use, and testing of a minor prior to hormone therapy. This study adds to the growing literature that highlights the educational needs specific to genetic counseling to promote individualized care for transgender patients.
Keyphrases
- end stage renal disease
- healthcare
- risk assessment
- chronic kidney disease
- newly diagnosed
- ejection fraction
- peritoneal dialysis
- mental health
- prognostic factors
- hiv testing
- public health
- papillary thyroid
- dna methylation
- genome wide
- men who have sex with men
- palliative care
- patient reported outcomes
- squamous cell carcinoma
- quality improvement
- mesenchymal stem cells
- south africa
- bone marrow
- gene expression
- copy number
- antiretroviral therapy
- hepatitis c virus
- cell therapy
- pain management
- lymph node metastasis