Patient Experiences in the Management of Inflammatory Bowel Disease: A Qualitative Study.
Raza M MirzaGail MacKeanSeth R ShafferMaida J SewitchCourtney HeislerJustine McLeodPeter HabashiKaren V MacDonaldKaris BarkerGeoffrey C NguyenDeborah A MarshallPublished in: Journal of the Canadian Association of Gastroenterology (2022)
The issues identified have the potential to impact priority areas in the system, IBD care delivery, and how outcomes can be improved by focusing on 'lived experience' and patient-centred care. The differing values and perspectives of all those involved in caring for patients with IBD underscore the importance of good communication with patients, caregivers and family members, as well as staying responsive to evolving needs.
Keyphrases
- palliative care
- healthcare
- end stage renal disease
- case report
- ejection fraction
- chronic kidney disease
- newly diagnosed
- quality improvement
- ulcerative colitis
- prognostic factors
- mental health
- pain management
- peritoneal dialysis
- skeletal muscle
- risk assessment
- cancer therapy
- drug delivery
- weight loss
- patient reported
- glycemic control