An Assessment of Perspectives and Concerns Among Research Participants of Childbearing Age Regarding the Health-Relatedness of Data, Online Data Privacy, and Donating Data to Researchers: Survey Study.

Rachele M Hendricks-Sturrup Christine Y Lu

Published in: Journal of medical Internet research (2023)

Our findings in light of Dobbs and other related events indicate there are opportunities to educate research participants about the health-relatedness of their digital data. Developing strategies and best privacy practices for discretion regarding digital-footprint data related to family planning should be a priority for companies, researchers, families, and other stakeholders.

Keyphrases

big data
electronic health record
health information
healthcare
public health
mental health
machine learning
artificial intelligence
social media
risk assessment
climate change