Integrating the Patient Perspective to Validate a Measure of Disease Severity in Inflammatory Bowel Disease: Online Survey of Patients and Their Physicians.

Antje TimmerJohanna NeuserDominik de SordiMartin Schmidt-LauberHubert AllgayerChristoph ReichelFrank KleblFlorian ObermeierElisabeth SchnoyPetra JessenJulia MorgensternUlf HelwigChristian MaaserLudger LeifeldSebastian SchmidtChristian MeinhardtUlrich BöckerAlexander ArltElke BästleinArne BokemeyerJan C PreißFabian Otto-SobotkaBirgit KaltzCornelia SanderWolfgang Kruis

Published in: Inflammatory bowel diseases (2024)

The DSI showed good discrimination for patient-reported disease severity in UC but performed unsatisfactorily in CD. Correlations were moderate. Further refinement of the DSI is suggested to better reflect the patient perspective.

Keyphrases

patient reported
case report
end stage renal disease
ejection fraction
newly diagnosed
primary care
prognostic factors
healthcare
high intensity
nk cells