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Strategies used to engage hard-to-reach populations in childhood disability research: a scoping review.

Miriam GonzalezMichelle PhoenixShikha SaxenaRoberta CardosoMichelle Canac-MarquisLindsay HalesConnie PuttermanKeiko Shikako-Thomas
Published in: Disability and rehabilitation (2020)
Our results can guide others who wish to engage a diverse group of children with disabilities and their parents in research. Research on how to engage other hard-to-reach populations within the childhood disability umbrella and evaluation of engagement strategies and outcomes is needed.IMPLICATIONS FOR REHABILITATION• Service providers should be concerned when the research informing their practices does not include families that represent their clients (e.g., families who are low income, Indigenous, ethnic minority, or LGBTQI parents of children with disabilities).• Strategies used to include children with disabilities in research, such as offering varied response methods that include story telling or photography, may also be used to promote participation in clinical services.• Service providers and teachers may have a role in facilitating the recruitment of 'hard-to-reach' families in research and advising researchers on methods to create a comfortable environment with accessible means of data collection for children with disabilities.
Keyphrases
  • healthcare
  • young adults
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  • metabolic syndrome
  • early life
  • weight loss
  • big data