Patients' testimonies, feelings, complaints and emotional experiences with dermatoses on open social media: The French infodemiologic patient's free speech study.
Tom MartyMickaïl KhadarLina AutelitanoCatherine BaissacAdel MebarkiNathalie TexierStéphane SchückMarie-Claude BoiteuxMarie Aleth RichardPublished in: Journal of the European Academy of Dermatology and Venereology : JEADV (2024)
This infodemiologic study highlighted the real-life management of five skin diseases by patients and their caregivers, who turned to social networks to openly express their suffering and seek solutions. The joined analysis of the five diseases enabled a common comprehension of what it is to live with a skin disease, from a patient-centric point of view. The specific analysis of each patient group objectified specific challenges, and main unmet medical needs.