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Old Challenges or New Issues? Genetic Health Professionals' Experiences Obtaining Informed Consent in Diagnostic Genomic Sequencing.

Danya F VearsPascal BorryJulian SavulescuJulian J Koplin
Published in: AJOB empirical bioethics (2020)
These findings suggest a tension remains between sufficient information provision at the risk of overwhelming the patient and imparting less information at the risk of uninformed decision-making. We suggest that a shift away from 'fully informed consent' toward an approach aimed at realizing, as far as possible, the underlying goals that informed consent is meant to promote.
Keyphrases
  • decision making
  • copy number
  • health information
  • case report
  • mental health
  • palliative care
  • genome wide
  • single cell
  • healthcare
  • gene expression
  • social media
  • dna methylation