A qualitative study on the impact of caring for an ambulatory individual with nonsense mutation Duchenne muscular dystrophy.

Kate WilliamsIan DavidsonMark RanceKatharina BueschSarah Acaster

Published in: Journal of patient-reported outcomes (2021)

Caring for an ambulatory individual with nonsense mutation Duchenne muscular dystrophy has a substantial multifaceted impact on caregivers. Treatments which have the potential to improve symptoms or delay progression, may also have a positive impact on the quality of life of caregivers.

Keyphrases

duchenne muscular dystrophy
blood pressure
palliative care
muscular dystrophy
risk assessment
depressive symptoms
human health