A Hospital-Based Online Patients Support Program, Online Adolescent and Young Adult Hiroba, for Adolescent and Young Adult Cancer Patients at a Designated Cancer Center in Japan.
Takatoshi HirayamaRebekah KojimaRyoko UdagawaYuko YanaiYuko OgawaMoeko TanakaAyako KayanoYuki MashikoKyoka OgataHiroto IshikiEriko SatomiPublished in: Journal of adolescent and young adult oncology (2022)
Adolescent and young adult (AYA) patients with cancer have few opportunities to interact with peers in their lives. To meet peers safely during the coronavirus disease 2019 (COVID-19) pandemic, a hospital-based online patients support program called Online AYA Hiroba was launched for AYA patients with cancer and held regularly by the National Cancer Center Hospital in Japan. This retrospective study suggested the degree of satisfaction with this program and issues about facilitating the sessions that are unique to the online environment. Our findings potentially contribute to the establishment of a hospital-based online patients support program for AYA patients with cancer at other hospitals.
Keyphrases
- young adults
- end stage renal disease
- social media
- chronic kidney disease
- health information
- coronavirus disease
- newly diagnosed
- childhood cancer
- peritoneal dialysis
- healthcare
- prognostic factors
- mental health
- patient reported outcomes
- emergency department
- sars cov
- respiratory syndrome coronavirus
- adverse drug
- patient satisfaction