Disorders of sex development (DSD) web-based information: quality survey of DSD team websites.
Michelle M ErnstDiane ChenKim KennedyTess JewellAfiya SajwaniCarmel FoleyDavid E Sandbergnull nullPublished in: International journal of pediatric endocrinology (2019)
Quality of DSD online content was poor, and would be improved by using a variety of strategies, such as simplifying word choice, using visual aids, highlighting actions patients can take and acknowledging areas of uncertainty. For complex conditions such as DSD, high-quality web-based information is essential to empower patients (and caregiver proxies), particularly when aspects of care are controversial.