Levelling the playing field of RMD research across Europe to address patients' needs: the emerging EULAR Research Centre.
Katja ReuterCarina HauptAnna MoltóAndrew CopeRonald F Van VollenhovenDirk ElewautRik LoriesIain B McInnesPublished in: RMD open (2022)
Herein, we describe the Research Centre launched by the European Alliance of Associations for Rheumatology (EULAR) in 2020. The Centre aims to facilitate collaborative research on rheumatic and musculoskeletal diseases (RMD) across Europe. RMDs disable millions of people in Europe and worldwide. Despite progress with improved therapeutics and strategic interventions in several RMDs, there are no cures, and their collective impact remains substantial. Access to RMD-related care, policies prioritizing RMDs, and related research, education, training, and funding differ significantly across European countries. Building a new equipoise in opportunity and capacity across Europe will facilitate optimal understanding of those different factors that influence the epidemiology, pathogenesis, treatment, and outcomes in RMDs. The EULAR Research Centre aims to address the significant barriers to accelerating RMD research across Europe. It provides an RMD research roadmap of unmet needs, expert services, infrastructures, networks, research resources, training, education, and mentoring. It will place RMD research in the ideal position to benefit from forthcoming remarkable advances in digital, biological, and social science anticipated in the coming decades.
Keyphrases
- healthcare
- quality improvement
- public health
- end stage renal disease
- mental health
- newly diagnosed
- rheumatoid arthritis
- ejection fraction
- chronic kidney disease
- small molecule
- type diabetes
- patient reported outcomes
- adipose tissue
- virtual reality
- juvenile idiopathic arthritis
- clinical practice
- affordable care act
- smoking cessation