Destination unknown: Parents and healthcare professionals' perspectives on transition from paediatric to adult care in Down syndrome.

Vincent J T PetersLevinus A BokLieke de BeerJoyce J M van RooijBert R MeijboomJan Erik H Bunt

Published in: Journal of applied research in intellectual disabilities : JARID (2022)

The transition in medical care for children with Down syndrome should be flexible, patient-centred and coordinated together with patients and parents. Only in ensuring continuity of care will individuals with Down syndrome not get lost in transition.

Keyphrases

healthcare
palliative care
end stage renal disease
ejection fraction
quality improvement
newly diagnosed
young adults
emergency department
peritoneal dialysis
pain management
case report
childhood cancer