Development and evaluation of a parent advisory group to inform a research program for knowledge translation in child health.
Lisa HartlingSarah A ElliottKelli BuckreusJulie LeungShannon D ScottPublished in: Research involvement and engagement (2021)
Our experience establishing a parent advisory group and evaluation of the group by parent members have yielded tremendous insights around involving parents and patient proxies in health research. The parent advisory group is a dynamic entity requiring ongoing communication between researchers and members. Effective means of evaluating engagement is essential to ensure it is meaningful. Dedicated time, funding and resources are required for success.